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Babchi Seed Powder - My experiences

Last post 11-16-2008, 6:29 AM by puckpuck. 37 replies.
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  •  08-07-2006, 8:28 AM 173 in reply to 98

    Re: Babchi Seed Powder - My experiences

    So Wing/Bonnes/Michele

    What is the current status for your desease?

    I have joined it today.

    I have a 17 years experience and still going on with Vitiligo and various treatments which i will post very soon.

     

  •  08-09-2006, 9:59 PM 175 in reply to 173

    Re: Babchi Seed Powder - My experiences

    HI Skrana

     

    Welcome to the forum.

    Not much to report of so far, I am still taking babchi powder, no healing seen yet and I can not say if it has halted the spread, as in my case the spread is not continuous, it stays ok for a long time and then spreads in more areas...

    I believe this is a common phenomenon. Would like to hear from yourself about what kind of treatments have you undertaken so far.

     

    Regards

    Wing

     

     

  •  08-28-2006, 12:22 PM 190 in reply to 175

    Re: Babchi Seed Powder - My experiences

    Hey all!! Bones here...been gone a little while.

    I have been perusing the site to see how you are all making out, and Michelle, it sounds as though you may have found your way back to the land of the pigmented!!

    While the gel I was using was the Novitil, and I got great results for a while, I am ashamed to say, I have such a hectic schedule, that the two times a day application wasn't happening; therefore I think I halted my progress. The smell was unbearable to those around me as well!! Can you say cod liver oil???

    If I haven't mentioned it before, I am a skin therapist, so vitiligo has become my obsession. Remembering what I've learned about visible light, infrared light is the most penetrating, and makes up about 60% of all visible light. The Novitil pamphlet stated you could use infrared light as an alternative to UVB and UVA exposure, without the harmful rays. Again, I had some success, but was not consistent. I have decided to try one other method of repigmentation since I am almost out of the gel. It took me over a month to get my doctor to agree to write the script for the Pseudocatalase cream, but I was able to order it this past Friday. I should receive it no later than Tues or Weds. The cream has to be made and shipped within a day (it has to come overnight because exposure to heat and elements can break down the compound). I will try it with my infrared light, and go to a tanning bed a few times a week. I will definately let you all know how it works.

    While speaking with my Esthetics director, she seems hopeful that this may work. She also suggested that I look into picking up a narrow band machine. Michelle, were they really expensive?? Can't say I can afford one yet, but your success makes it mighty tempting!!

    Wing, how are you? I would love to see one of these treatments work for you. I will keep you all posted about the cream. I wish the best of luck to everyone.

     About four weeks ago, I was at a county fair, and my husband kept nudging me and poking me to look at a woman standing about a hundred feet from me. When I looked, I noticed on her legs was severe vitiligo, and I walked away from my husband. The woman must have seen him staring, because she looked completely deflated when she saw me glance at her. I tried to explain to my husband that though his intentions were not malicious, the way he made that poor woman feel was evident, and I was furious; not only at him, but that I wanted so much to approach her and tell her about this website, and all of us out there who are in need of support and resources. But how do you do that? I felt bad because something may have worked for her. Anyway...just thought I'd share.

    Will stay in touch,

    Bones 

  •  08-28-2006, 11:24 PM 191 in reply to 190

    Re: Babchi Seed Powder - My experiences

    Hi Bones and helllo to everyone also on this forum.

    Good to hear from you Bones that the Gel seems to be working, as Michelle has reported the same.

    We all of us has experienced the situation which you mentioned when suddenly you see someone staring at your marks and then when they catch your eye they start looking elsewhere.

    Meanwhile with the Babchi powder ( I still has some left) , my skin especially on hands has extremely dry now, the spots are still there , I think they are still growing. But the color on the spots on my hands is not so whitish any more, they are one or two shades darker. I think it is due to my skin's increased photosensitivity due to the Babchi seeds powder intake.

    I just stopped taking the Babchi seed powder for the time being.

    I am now on the cross roads what to do next.

    I have been thinking about the portable UV light option , but as you said that it is expensive, however based on  Michelle's experience, I think it will be worth a try.

    I sure can not afford the full body tanning, however I will think of buying the portable one.

    The GEL which you used is another option. 

     

     

  •  08-26-2008, 1:39 PM 955 in reply to 67

    Re: Babchi Seed Powder - My experiences

    Hi,

    could you let me know the names of the products you use. My condition is worseining and I need help!

    Thanks

  •  08-26-2008, 1:46 PM 956 in reply to 98

    Re: Babchi Seed Powder - My experiences

    I too have have my condition a long time and spent a small fortune trying many things. A warning about the narrow band uv light-I bought one and used it and now my condition has spread like a wildfire. Just a caution. It may not happen to you and I hope it doesn't!

    Take care!

  •  09-01-2008, 1:13 AM 969 in reply to 956

    Re: Babchi Seed Powder - My experiences

    Hi Jaquar

    I have exactly the same experience with the UV Chamber, I did this treatment at a hospital, I ended up with more patches all around, in the beginning the  unaffected skin got darker, so there were many more patches which were evident, when the affect of the treatment finished, the unaffected skin became the normal and the new patches slowly became completely white.

    Regards

     

     

  •  11-16-2008, 6:29 AM 1046 in reply to 969

    Re: Babchi Seed Powder - My experiences

    Hello all,

    Did you have any luck with the babchi seeds. Your input is highly appreciated.


    regards,


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