Vitiligo Support Forum

Hi Everyone,

I don't have vitiligo but my eleven year old son has it. ( at least that is what our family doctor says). He has an appointment on the 13th of August to see a dermatologist. It seems like one day he was fine and then the next wham...he had it all over his face, neck and scalp and that was the at the end of June. I went to a 5 day conference and the boy had one tiny white spot on his cheek and two weeks later it just spread like wildfire. He is also losing his hair in small patches on his head. School starts in about 2 1/2 weeks where we live and now he doesn't want to go. He will be in the sixth grade. I have went to a lot of web sites to see what they say about vitilego, but it doesn't seem there is a lot of different things and they sure don't tell you what to do about it while at home waiting to see the dermatologist. I have just been making sure that my son puts on sun screen every morning after his shower and have been making him wear a hat when he goes outside. We live in the Mojave desert of southern California, so the sun is really strong here. I am really glad to have found this forum and to meet all of you. If you have any advice on how I can help my young son deal with this, please let me know.

Thank You All!

A Very Worried Mom

Hello my name is Pat and im not such a big fan of the ol' vitiligo myself. Ive only had it about 3 years now and have tryed many treatments without any success. Im 27 and its now across most the left side of my face, not really to good looking. My friends are nice about it and so is my fam. but meeting new people is dif. and im very sick of strangers asking whats wrong with my face. I try to enjoy myself and dont let it really bother me much but last week my derm. dismissed me as his pacient cause lack of results within the past year of treatments every other day. Talk about depressing. Well i hope all is good with you, keep on smiling.

I've only had the condition for a few months now and it is depressing I have to admit.  But truly and honestly what are you going to do?  I am trying some all natural treatments and see what becomes of those but other than that there really is nothing.  Women are lucky that they can use makeup to help the situation but for men I realize it must be difficult.  I just always try to keep thinking that my family and friends love me and care for me so a few white patches won't get me down!  Keep your heads up everyone! 

I'm a vitiligo victim too.

I sense so much anger, hatred, frustration, confusion ... fear here. I was once like that too, but I've learned to find peace with my self ... within. First thing first, if we vitiligo patients DO NOT ALLOW (by that I mean in our own mind, heart and soul) others to demean us, NO ONE can. Our worth as a human being is more than just skin deep. Our family and friends love us, and most of the time, it's WE ourselves who are wallowing in pity-party about our vitiligo conditions.

Have you ever wonder why some vitiligo patients had 100% repigmentation ... some had 95% ... some had 75% etc. Is it really true that vitiligo has NO CURE?

I came across this interesting article entitled Vitiligo: Can or Cannot Be Cured? by an ex-vitiligo patient who had 100% repigmentation. It's indeed thought provoking. There are a lot of truth in what have been said there.

If  you are interested to read it, go to ...

http://vitiligo-cure.blogspot.com/2008/10/vitiligo-treatment-bullets-1.html

When I was first diagnosed with Vitiligo I got talking to someone (nice and tanned) who said she had suffered with it but all her pigmentation had come back.  Since mine hasn't disappeared I have come to the conclusion that for the lucky few it does go away but I don't think I fall in that catagory, altho it is better than it was.