Vitiligo Support Forum

Hi HSA,

My name is Mike and I live in Cincinnati, Ohio. I've had Vitiligo for about 52 years.
I highly recommend that you visit a recommended Dermatologist, in person if possible. I'm lucky to have Dr. Nordlund here in Cincinnati. He is one of the most highly qualified and recommended Dermatologists in the world.  I'm about to start treatment via him. A number of sites on the net have specialized doctor searches (even by area). I personally have experienced some of the biggest idiots that call themselves doctors and/or Dermatologists. And yes, they are still out there in large numbers. I'm not saying that Dr. Shaw is bad by any means, I've heard a lot of good about him. But treatment solely done by email doesn't seem practical to me.
I'm willing to be a support person for anyone out there if they wish. I'm new here and not sure if we're allowed to put our email address on here or not. Of course I have a thousand stories about Vitiligo to share.

What medicine were you taking?

Hi,
   I have been supporting my sister who has vitiligo for the past 35 years. She had a little spot on her foot, when she was 5 years old.  Now its been gradually started spreading the whole body.
I have literally took in stride her anger, depression frustation and everything else that follows. Shorttemper, wrong career choice and its been terrible from day one.  We tried everything that was suggested to us and spent hunndreds of thousands of dollars.  Frankly, I dont think any of these medications allopathy, unani, ayurvedic worked for her. They had a temporary pigmentation but , there was always more expected of off these medications. Food restrictions depleted her immune system further. No vitamin c, No fruits , etc etc , I think is a bull crap.
After watching her and living with her I think something topical is the best solution untill a permanant cure is found. Did anyone try tanning?  I do not have vitiligio, but  I went through everything which a person with vitiligo will go through. Its horrible.
If Tanning works, I think  all vitiligo patients should go for it .

My argument , food restrictions, social inhibition causes more mental damage. This is a topical problem and why not solve it with topical applications. Dermabest, Tanning. I understand the cancer risk with tanning, but it outweighs longterm affects of malnutrition, unhappiness  , social outcastness is more debilitating.

GB

hi hsa

i suggest that you go personally to a dermatologist.. and not by mail!
good luck

:)

VISIT Doctor Li. She is very special.

Merryclinic.com. I have posted a great deal of my success from her products in the forums section.

I recommend to never ever Stress, as it is detrimental to just about everything.
Her vitilax oil helps stimulate pigment with regular treatment of the sun. She is always available by phone and by email. I cannot emphasize how much Love I have for Dr. Li.  

Hi,
I am 33 and diagnosed with vitiligo when I was 13. I came across Dr. Shah's website a few months ago and ordered a 4 month plan last week.

I am going to start the remedy sent by them soon. I was wondering if using their supplement worsens your vitiligo or had any other side effects? My medication is "Natrum Muriaticum ". Have you ever used this one?

Appreciate your feedback and wish you all re-pigmentation.

Thanks,
Nora

Nora

I had the following medicines from him

April 2006            NAT - MUR 200  ( No change)
August 2006        THUJA 30 C  ( It started making the spots worse
October 2006       KALI - IOD 30  ( No change)

In December 2006 I stopped taking any more homeophathic medicines.
My spots are still the same.

Thanks HSA! I have decided to try Dr Li's solution. The one was mentioned on this forum. I will keep you posted wit results.

Best,
Nora

Thanks HSA! I have decided to try Dr Li's solution. The one was mentioned on this forum. I will keep you posted with results.

Best,
Nora

Hi,
 I am new to this website and have read about your problem,HSA.
I am also having this desiese from the past 6 years although total body area affected is very low below 2%.
I have once taken Dr. Shah treatment for 4 months but with no results.What i have found about Dr. Shah is that he popularise his site so much and have good communication.And I personally believe that he makes a lot of money by doing so.He is not the only one who does so..
 But I strongly believe that this desiese can be treated with Homoeopathy provided you are given the right medicine But I can tell u that U will find very few no. of good homeopathic doctor around you(atleast in INDIA).
 In homeopathy,they will not treat you with this particular desiese but they will give you medicine depending upon your overall symptoms.
 If you want to cary on your treatment with homeopathy, then find out a good homeopathy doctor around you.There is a good news about homoeopathy that some website have been launched from where you can find your own medicine depending upon your symptoms.But I would say that get those medicine checked with your homeopath before taking it.
 And one most important thing,I have found through this site some people try to advertise some doctors.Check about Dr. Li. you will find many products saying they will treat vitiligo but all of them do not give good results with everyone and I believe many of them are fake.If one is applying external treatment then in almost all cases there in one compound PSORALEA (BABCHI) which is found as the main ingradient. I have seen the seeds from which psoralea is extrated and some people say that applying that sed in paste form, this desiese can be treated but I have seen no results with me.psoralea is also given orally .
Tarun(INDIA)

O sorry I forget to give name of those website they are..
http://www.webhomeopath.com
http://www.webhomeopath.com
and even the forum where you can take advice of online doctors.

tarun

O sorry I forget to give name of those website they are..
http://www.abchomeopathy.com/
http://www.webhomeopath.com
and even the forum where you can take advice of online doctors.

tarun

im new to this whole thing and ipersonally do not suffer from vitiligo but my boyfriend does. i was just researching online and the websites all say the same thing, i just wondered if anyone could advise me from experience... thanks x

im new to this whole thing and ipersonally do not suffer from vitiligo but my boyfriend does. i was just researching online and the websites all say the same thing, i just wondered if anyone could advise me from experience... thanks x

Actually vitiligo is irregularity of  internal resistive system of human beings, and currently there are no known permanent ways to treat this process.
Vitiligo results from a derangement of your normal defense mechanisms against infection. The body starts producing antibodies against pigment producing cells of its own skin.
Although the  complete annihilation of the vitiligo from your body is a difficult  matter, whereas original color of skin can be brought back.
According to my observation tropical treatment is quite better Cure of   vitiligo because there has no side effect as well as negative effects. Other thing is you can apply it for  some affected part of your body for testing  purposes. And final thing which you need is  tropical treatment is quite faster than homeopathy.  
For all these  useful information to  thanks goes to  
http://www.antivitiligo.com

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Hi HSA,

I didnt go to Dr Shah but uncle did fly all the way there and spent a lot and still nothing improved.again, different people will gain different results depensing on their background.

I would recommend to fix it internally, that means avoid turmeric, chillies and milk n take supplements (thats what my Dr mentioned) and after 2 months, I see brown spots coming up onmy white patches..
oh ya, been having vitiligo since i was 17, and I am a 27 yr old woman now.
I think u guys know how stressful it is to wake up every morning and asking GOd-'why me?".

Anyway, never ever give up and im more than happy to forward u the Dr s prescription letter.

I m new to this forum n dunno how ppl contact ppl.

errm, Ill check this forum again later then ya.
God bless all of us.

Never loss your hear, try to be happy, when ever you feel inferior due to your appearence try to engage yourself in any other hobbies  and face your skin condition bravely
feel yourself healthy and active than any person